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Beitragstitel | Development and validation of an interdisciplinary pathway for the management of uveitis in Switzerland |
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Beitragscode | P50 |
Autor:innen | |
Präsentationsform | ePoster |
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Abstract-Text |
Purpose: Uveitis is a rare disease with a substantial patient burden, often requiring interdisciplinary management by two or more clinical specialties. Access to care depends on the chief complaint and may occur outside of ophthalmology. Management by interdisciplinary teams is prone to inefficiencies. Care is typically organized in clinical silos and coordination between teams is unstructured. In addition, the patient journey remains poorly understood. Yet analyzing the patient journey is key to identifying inefficiencies in care delivery and pain points that jeopardize patient care and well-being. The aims of this program are threefold: a) to identify the patient journey for uveitis in a tertiary care setting, b) to identify best practice standards for uveitis management, c) to implement and validate an interdisciplinary uveitis management pathway in terms of efficiency gains and patient quality of life. Methods: Mixed methods approach: Patient pathways will be identified using information from referral letters and semi-structured interviews with patients presenting to the eye clinic with a case of uveitis between September 1, 2023, and March 1, 2024. Using systematic review methodology, we will identify relevant literature describing and validating interdisciplinary management approaches for uveitis. Based on these, we will design and implement a multidisciplinary management pathway. The impact on improving time to treatment, clinical outcomes, and patient health-related quality of life will be evaluated using a pre-post study design. Results: Learnings from the analysis of 15 cases will be presented. The study will broaden our understanding of the uveitis patient pathway across clinical settings and identify opportunities to improve care. We aim to define an interdisciplinary management pathway that will strongly support and streamline the patient journey. Based on the findings of this study, we will create a blueprint for other clinics who wish to implement this new care structure in their institution. Conclusion: The results of this study will improve the care of patients with uveitis, a rare disease with a significant disease burden. Moreover, by highlighting the challenges of interdisciplinary management of rare diseases and providing a blueprint for care in other clinical conditions, this study has the potential to generate substantial societal transfer value for other rare diseases that affect approximately 0.5 million people in Switzerland. |